Our trustee board

Chloe Joyner

Chloe Joyner brings lived experience as the parent of a teenager with Usher syndrome, along with experience of designing and delivering the strategic vision for the charity. She is a passionate patient advocate who contributes to a wide range of steering groups, projects and partnerships both nationally and internationally.

Clare Watson

Clare Watson

Clare has previously worked within the criminal justice system supporting individuals back into education, training and employment and is currently Head of My Sighted Guide Improvement for Guide Dogs. Clare has worked in the charity sector for the last 11 years, managing various projects supporting individuals with sight or sight and hearing loss.

Clare believes in the transformation of services to make sure that everyone has access to the information and support they need, being part of Usher Kids UK means that I can ensure that children and families are informed, supported and connected to others within the community.

Jon Holloway

Jon Holloway

Jon Holloway, I am a Director of Finance for an International Software Company and I’ve been involved with Usher Kids UK since its inception. As the organisation moved from community led to a registered charity I have volunteered my services as Treasurer. I’m a father of 3 and my teenage daughter has Ushers Type 1. I  want to see all children and young adults living with Ushers fulfil their potential as they move through their school years and into the working community.

Kate Atkinson

Kate Atkinson

Kate is a parent to a child with Usher syndrome. She is passionate about ensuring all Usher families have the information and support they need for their young person to thrive. Kate has a background in publishing, communications and education.

Professor Mariya Moosajee

Professor Mariya Moosajee

Professor Mariya Moosajee: Mariya is a Consultant Ophthalmologist at Moorfields Eye Hospital and Great Ormond Street Hospital for Children. Mariya is an international expert in the field of genetic eye disease and leads a research lab at University College London Institute of Ophthalmology, and is the group leader of ocular genomics and therapeutics at the Francis Crick Institute, London. Mariya regularly sees children and young adults living with Usher syndrome in her clinic and is a passionate advocate for our community. Her research lab is focused on furthering our understanding of the disease mechanisms causing Usher syndrome and developing new potential therapies such as non-viral gene therapy and the use of small molecule drugs.

Laura Ross

Laura Ross

Laura Ross: Laura is the children and genetic Eye Clinic Liaison Officer (ECLO) based in Manchester Royal Eye Hospital providing emotional and practical support to children, young people and families. Working within the sight loss sector for 10 years has given Laura an insight into the importance of advocacy and connections within the Usher community. As a Trustee, Laura is keen to continue learning from families and supporting Usher Kids UK to thrive

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