We offer lots of ways to connect with our community of families and professionals

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Virtual connections

Chat with other parents and carers of children and young people with Usher syndrome at our informal monthly virtual meeting. Register here to find out more and receive invites.

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In-person connections

Our regular in-person events to meet and learn alongside other families.

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Usher stories

Hear about the experiences of others within our community who are at different stages of their journey with Usher syndrome.

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Get in touch

You can contact us at any time, and we will do our best to connect you with the information or support which we know can make a difference.

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Stay in touch

We send out emails to keep people on our mailing list up to date with events, new resources and other services which we think are relevant to our community.

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