Stories

Chloe Reed

Chloe Reed

When I was 14 years old, I had a routine eye check-up with an ophthalmologist who wasn’t my regular one. During the examination, she noticed some unusual spots behind my eyes and showed some concern.

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Asia

Asia

Since there’s a very good chance you have no idea who I am, let me introduce myself – My name’s Asia. I’m a 25-year-old graphic designer from the lovely county of South Yorkshire.

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Rebecca Sutton

Rebecca Sutton

Hearing those words “He’s going blind”…. somehow I managed to keep it together for the rest of the phone call. Kaileb’s Dad walked into the room as I put the phone down, we looked at each other and I crumbled, he didn’t need to ask me why, in that moment our son’s life had changed forever.

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Matthew Dean

Matthew Dean

I have Usher syndrome type III. I started losing my hearing first at around 14 and my sight at 17. By the time I was 21 my hearing was a moderate to serve loss and I had around 10% useful vision.

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Matt Denton

Matt Denton

Charlie’s Usher’s journey has so far been dominated by his deafness. He failed the newborn hearing test and six months later we were told that he was mildly deaf. The Doctor reassured us that it wouldn’t really impact on his life but that he may have to sit at the front of the class when he started school. 

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Claire Morley

Claire Morley

I was born in 1974. When I was two it was determined that my older sister Catherine was deaf so I was tested too. I was also deaf. I got my first pair of hearing aids then. I don't remember life without them.

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Catherine

Catherine

I am 46 yrs old with Usher syndrome 2a. I am married with two teenage boys 15 and 13. I am Director of EC Energy Ltd, we are a small family run company. I manage the finances of this and 3 other sister companies.

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Callum Sutton and Kaileb

Callum Sutton

It’s one thing to be told that life can change in an instance, but seeing it happen in front of you is an entirely dissimilar experience. When I was first informed that my younger brother Kaileb had profound deafness, it brought so many questions to mind.

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