Often other parents are the best experts you will ever come across in your journey with Usher syndrome. You can connect with other parents in our private Facebook group.
You can also chat directly with other parents from all over the world at our monthly “USHchats” zoom call, hosted in partnership with intervnational Usher-focused organisations. These informal zoom calls take place every third Thursday of the month (8-9pm UK time), and are designed for parents and carers to connect with others whose children are at different ages and stages, to share experiences, ask questions, learn from and support each other.
Register to receive information and calendar invites to join.