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We are a small charity with a big mission: to empower the 1,000 children, young people and their families living with Usher syndrome in the UK, by giving them access to tools, resources and connections which help them to thrive.

You can donate on a one-off or monthly basis via Justgiving.

Donate via Justgiving

All donations go directly to providing families with information and support from diagnosis onwards, and giving our community of families, professionals and experts regular opportunities to connect.

Stay in touch

We send out emails to keep people on our mailing list up to date with events, new resources and other services which we think are relevant to our community.

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