Find support

Many families find it helpful to access support as they adjust to a diagnosis of Usher syndrome. Every parent, child and young person responds differently, so the type of support which is helpful can vary between people, and also over time. At Usher Kids UK we understand the journey you are on, and can connect you with different types of support depending on your needs.

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Emotional support

It is natural to feel lots of different emotions following an Usher syndrome diagnosis. One of the most common questions we are asked is “how should I talk to my child about their diagnosis?” In this section we share advice from professionals and other families about how to handle these conversations, and also how to look after your own emotional needs.

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Practical support

A diagnosis of Usher syndrome generates lots of questions, and it is often hard to know where to turn to find answers and practical support. In this section we connect you with sources of practical support.

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