Usher Kids UK

Usher Kids UK exists to empower children and young people (aged 0-25yrs) and their families living with Usher syndrome. We provide information, support and opportunities to connect, giving every child and family the tools they need to thrive.

About us

Usher Syndrome - what you need to know

New diagnosis of Usher Syndrome?

We know that a new diagnosis can generate lots of questions. We are here to help you learn more.

Information hub

Young people with Usher Syndrome

Find support

As a charity created by families for families, we understand the journey you are on. We are here for you, and can signpost you to support for every step of the way.

Find support

Connect with us

We offer lots of ways to connect with our community. You can meet other families at our regular virtual and in-person events, and join our online community.


Two children playing with a rabbit

Stay in touch

We send out emails to keep people on our mailing list up to date with events, new resources and other services which we think are relevant to our community.

Join now