In-person Connections

A young boy playing with a truck

Family events

Every year we host two free one-day events which bring our community of children, young people and families together.

Each spring we host a family fun day, giving children and young people (including siblings) the chance to have fun and build friendships within our community, and giving parents and carers the chance to connect with others in an informal environment.

The next family fun day takes place on Saturday 13th April 2024 at Haringey Play in London, and is free for children, young people and families (including siblings). Registration has now closed for this event, and we look forward to welcoming all families that have registered.

Each autumn we host a family information day, which includes a programme of activities for children and young people (including siblings) of all ages, and a separate programme of workshops and expert speakers for parents and carers. In 2024, this event will take place on Saturday 5th October in Birmingham. Registration link will be added here once it is open, in the meantime save the date!

Summer Camp

Every summer, with funding from Deafblind UK, and in partnership with USA charity Ava’s Voice, we host a week-long residential ‘USHthis camp’ for 11-25yr olds who live with Usher syndrome. The majority of attendees have never met another person with Usher syndrome before coming to camp, making this is a unique opportunity for them to build friendships with peers, mentors and role models, whilst fostering skills and confidence which last a lifetime. We offer the opportunity for professionals to volunteer at our summer camp, gaining invaluable insight into the lived experiences of our community, and bringing their expertise to make this life-changing camp extra special!

Our next camp will take place from 5th to 10th August 2024, in the Lake District.

Registration for campers (aged 11-17yrs) is open – register here!

Registration for mentors (aged 18-25yrs) and volunteers is now closed, and we’ll be in touch directly to discuss next steps.

A girl in a blue hoody at summer camp

Stay in touch

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